Both Jonathon and I are anxious to see the special mass that our friends at Notre Dame held today. We are honored that they had this mass to pray for Jonathon, and it is extra special that it was in my old dorm. There are very few places you can work that care so much.
After a week of doing pretty well, today was the first day that Jonathon really felt bad. The nausea started this morning and wouldn't let up, and he's just totally exhausted. He's also starting to get a little stir crazy and wants to get out of here, but doesn't have enough energy to really do that. And like he mentioned yesterday, the metallic taste of just about everything is still driving him nuts.
But in the grand scheme of things, I think we've been really lucky so far. I just keep praying that things continue to look positive. The doctors keep telling us that he is their "boring" patient since his case is relatively uncomplicated so far, and he's responding so well to treatment. That is music to my ears.
A lot of people are asking when it might be ok to come visit, and we continue to ask almost everyone to hold off on coming here. If you have the slightest little sniffle, cough, or sneeze, or even were around someone that has the slightest sniffle, cough, or sneeze, or if you have kids, or are around kids, you could bring something in that might get Jonathon (or one of the other patients on this floor) very sick. Once we get through the round of chemo next week, we might be able to start coordinating visits with one or two people at a time, but please no surprise visits.
Other than all that, today was a pretty quiet day, which I have to say - is pretty nice. It's crazy how a little over a week ago, we were sitting at home on our couch, trying to decide what to make for dinner and playing paper, rock, scissors to see who would take the dogs out next, and now our whole life has totally changed. It helps put things into perspective in a lot of ways, and makes you again realize how special every single moment is with the people you love.
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Friday, January 30, 2009
Day 8: A little perspective
Both Jonathon and I are anxious to see the special mass that our friends at Notre Dame held today. We are honored that they had this mass to pray for Jonathon, and it is extra special that it was in my old dorm. There are very few places you can work that care so much.
After a week of doing pretty well, today was the first day that Jonathon really felt bad. The nausea started this morning and wouldn't let up, and he's just totally exhausted. He's also starting to get a little stir crazy and wants to get out of here, but doesn't have enough energy to really do that. And like he mentioned yesterday, the metallic taste of just about everything is still driving him nuts.
But in the grand scheme of things, I think we've been really lucky so far. I just keep praying that things continue to look positive. The doctors keep telling us that he is their "boring" patient since his case is relatively uncomplicated so far, and he's responding so well to treatment. That is music to my ears.
A lot of people are asking when it might be ok to come visit, and we continue to ask almost everyone to hold off on coming here. If you have the slightest little sniffle, cough, or sneeze, or even were around someone that has the slightest sniffle, cough, or sneeze, or if you have kids, or are around kids, you could bring something in that might get Jonathon (or one of the other patients on this floor) very sick. Once we get through the round of chemo next week, we might be able to start coordinating visits with one or two people at a time, but please no surprise visits.
Other than all that, today was a pretty quiet day, which I have to say - is pretty nice. It's crazy how a little over a week ago, we were sitting at home on our couch, trying to decide what to make for dinner and playing paper, rock, scissors to see who would take the dogs out next, and now our whole life has totally changed. It helps put things into perspective in a lot of ways, and makes you again realize how special every single moment is with the people you love.
After a week of doing pretty well, today was the first day that Jonathon really felt bad. The nausea started this morning and wouldn't let up, and he's just totally exhausted. He's also starting to get a little stir crazy and wants to get out of here, but doesn't have enough energy to really do that. And like he mentioned yesterday, the metallic taste of just about everything is still driving him nuts.
But in the grand scheme of things, I think we've been really lucky so far. I just keep praying that things continue to look positive. The doctors keep telling us that he is their "boring" patient since his case is relatively uncomplicated so far, and he's responding so well to treatment. That is music to my ears.
A lot of people are asking when it might be ok to come visit, and we continue to ask almost everyone to hold off on coming here. If you have the slightest little sniffle, cough, or sneeze, or even were around someone that has the slightest sniffle, cough, or sneeze, or if you have kids, or are around kids, you could bring something in that might get Jonathon (or one of the other patients on this floor) very sick. Once we get through the round of chemo next week, we might be able to start coordinating visits with one or two people at a time, but please no surprise visits.
Other than all that, today was a pretty quiet day, which I have to say - is pretty nice. It's crazy how a little over a week ago, we were sitting at home on our couch, trying to decide what to make for dinner and playing paper, rock, scissors to see who would take the dogs out next, and now our whole life has totally changed. It helps put things into perspective in a lot of ways, and makes you again realize how special every single moment is with the people you love.
1 comment:
you are so right Katie. This is just going to be a bump in the road of the rest of you lives together. When every Jonathon has a bad day, or is feeling queasy, I like to think of it as the leukemia is having even a worse day! The chemo is in there doing its job and kickn' this thing in the ass! We all want to see Jonathon, but as you said, no one wants to jepordize his recovery. I know I personally couldn't live with my self! I am sure Katie that you know you are my hero for being there right by Jonathon's side for every good and bad moment! I have a big hug waiting for you when you two come home!!!
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you are so right Katie. This is just going to be a bump in the road of the rest of you lives together. When every Jonathon has a bad day, or is feeling queasy, I like to think of it as the leukemia is having even a worse day! The chemo is in there doing its job and kickn' this thing in the ass! We all want to see Jonathon, but as you said, no one wants to jepordize his recovery. I know I personally couldn't live with my self! I am sure Katie that you know you are my hero for being there right by Jonathon's side for every good and bad moment! I have a big hug waiting for you when you two come home!!!
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