Thursday, January 29, 2009

Day 7: Food Bad, Xbox Good!

The University of Chicago Hospitals might be nationally known for their treatment program with Leukemia and other things, but I can guarantee they are no where near the national rankings in food satisfaction. Blech! So much of what they have here is incredibly bland and average tasting - kind of like Rachel Ray's stuff. Oh snap! (Sorry, don't meant to offend any Rachel Ray lovers here.) Rachel could learn a thing or two from Giada de Laurentis, swear to Jesus. Despite the fact that the food isn't all the great, I'm also dealing with some sort of metallic/medicinal taste in my mouth that won't go away. It seems to have started with the chemotherapy, although I can't be sure. But it's driving my crazy.

My buddy Dan came up to see me today. He was already coming into town this weekend and stopped by for a 'say-hi.' He tried to help in getting my Xbox working online, but we're pretty sure it's the hospitals IT staff that are prohibiting that. I can still play my games, just locally and not online. Bummer. Everyone I play with on Call of Duty better rest up, cause the Bludstndhricane is down but not out yet! Example

I did get a 2 hour round of chemotherapy today. T
his dose, if anything, just made me very sleepy and worn out. I didn't get to walk on the treadmill today. Katie walked me up and down the hallway a few times, but that was about it.

The doctors are very pleased with my progress so far. One of the doctors we really love, Dr. Stock, who is pretty much the lead-lady on my case, keeps mentioning the word 'out-patient.' She mentioned it yesterday and today too. However, today she asked how long of a commute we have from home to Chicago. She's hinting at sending me home and doing the rest of this treatment out-patient. Of course, that gets us very excited. Nothing would make me more happier than to go home earlier than expected. But I don't want to go home until it's safe for me to do so either. I want everyone, including the doctors to be comfortable with that decision before doing it. So, we'll see what happens there.

My sister Jen is coming up tomorrow for a tissue-typing to see if she's a match for me with bone marrow. There's only a 25% chance that she is, but we figure it's worth a shot to find out. Everyone else has a 1% or lower chance of matching my bone marrow. That's crazy isn't? It's a wonder sometimes how our species survived in the first place.

4 comments:

  1. Your such an over achiever! That will be great if you can bust out of there early. When you get back we will bring over some dining hall food. Talk about bland!! I am sure that Jenna will be a match for you if you get to that state, but my bet is on you that you won't!! And as you remember, when we make bets.....'nuf said!!

    ReplyDelete
  2. There must be some hospital food policy that states the food can't be really good; afterall, they don't want people staying too long. And it helps for food services to pick up blame for things instead of always blaming the IT department when things go wrong.
    BTW, Jenn is bringing hugs from all of us!

    ReplyDelete
  3. Glad to hear/read that all is going well. You should really use your art talent and customize your masks, like a cool shark face or a big clown smile on it. Oh yeah!! You could also get an extra mask and wear it on your forehead, then you could be a Klingon Borg dude.

    The possibilities are endless...

    Anyway, glad you are getting around well and things are heading in the right direction.

    P.S. Uncle Paul has a message for you!!!

    ReplyDelete
  4. Hey, you better be careful. You mention Giada de Laurentis as a great cook, but what about the famous Peggy Rowland and Katie Rose. Giada won't be coming to your house with dinner, so you better be careful what you say.
    I expect you to be home this time next week watching soap operas on the sofa with your puppy and Katie beside you.

    ReplyDelete

Thursday, January 29, 2009

Day 7: Food Bad, Xbox Good!

The University of Chicago Hospitals might be nationally known for their treatment program with Leukemia and other things, but I can guarantee they are no where near the national rankings in food satisfaction. Blech! So much of what they have here is incredibly bland and average tasting - kind of like Rachel Ray's stuff. Oh snap! (Sorry, don't meant to offend any Rachel Ray lovers here.) Rachel could learn a thing or two from Giada de Laurentis, swear to Jesus. Despite the fact that the food isn't all the great, I'm also dealing with some sort of metallic/medicinal taste in my mouth that won't go away. It seems to have started with the chemotherapy, although I can't be sure. But it's driving my crazy.

My buddy Dan came up to see me today. He was already coming into town this weekend and stopped by for a 'say-hi.' He tried to help in getting my Xbox working online, but we're pretty sure it's the hospitals IT staff that are prohibiting that. I can still play my games, just locally and not online. Bummer. Everyone I play with on Call of Duty better rest up, cause the Bludstndhricane is down but not out yet! Example

I did get a 2 hour round of chemotherapy today. T
his dose, if anything, just made me very sleepy and worn out. I didn't get to walk on the treadmill today. Katie walked me up and down the hallway a few times, but that was about it.

The doctors are very pleased with my progress so far. One of the doctors we really love, Dr. Stock, who is pretty much the lead-lady on my case, keeps mentioning the word 'out-patient.' She mentioned it yesterday and today too. However, today she asked how long of a commute we have from home to Chicago. She's hinting at sending me home and doing the rest of this treatment out-patient. Of course, that gets us very excited. Nothing would make me more happier than to go home earlier than expected. But I don't want to go home until it's safe for me to do so either. I want everyone, including the doctors to be comfortable with that decision before doing it. So, we'll see what happens there.

My sister Jen is coming up tomorrow for a tissue-typing to see if she's a match for me with bone marrow. There's only a 25% chance that she is, but we figure it's worth a shot to find out. Everyone else has a 1% or lower chance of matching my bone marrow. That's crazy isn't? It's a wonder sometimes how our species survived in the first place.

4 comments:

  1. Your such an over achiever! That will be great if you can bust out of there early. When you get back we will bring over some dining hall food. Talk about bland!! I am sure that Jenna will be a match for you if you get to that state, but my bet is on you that you won't!! And as you remember, when we make bets.....'nuf said!!

    ReplyDelete
  2. There must be some hospital food policy that states the food can't be really good; afterall, they don't want people staying too long. And it helps for food services to pick up blame for things instead of always blaming the IT department when things go wrong.
    BTW, Jenn is bringing hugs from all of us!

    ReplyDelete
  3. Glad to hear/read that all is going well. You should really use your art talent and customize your masks, like a cool shark face or a big clown smile on it. Oh yeah!! You could also get an extra mask and wear it on your forehead, then you could be a Klingon Borg dude.

    The possibilities are endless...

    Anyway, glad you are getting around well and things are heading in the right direction.

    P.S. Uncle Paul has a message for you!!!

    ReplyDelete
  4. Hey, you better be careful. You mention Giada de Laurentis as a great cook, but what about the famous Peggy Rowland and Katie Rose. Giada won't be coming to your house with dinner, so you better be careful what you say.
    I expect you to be home this time next week watching soap operas on the sofa with your puppy and Katie beside you.

    ReplyDelete