This 'ol cat is still here. I haven't forgotten about the blog, it's just getting increasingly difficult to type in it, with what's going with my hands. (neuropathy.)
In the last two weeks, I've gotten really bogged down with fatigue and can't do too much besides eat and sleep. It's possible I may have a cold or the flu. I have 1 more day of chemo this week and then 4 again next week with a trip to Chicago in there somewhere.
I just really wanted to remind me people that I'm here and will continue to be posting as my hands allow it. Thank you for all your thoughts and prayers.
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Thursday, April 2, 2009
I'm Still Here!
This 'ol cat is still here. I haven't forgotten about the blog, it's just getting increasingly difficult to type in it, with what's going with my hands. (neuropathy.)
In the last two weeks, I've gotten really bogged down with fatigue and can't do too much besides eat and sleep. It's possible I may have a cold or the flu. I have 1 more day of chemo this week and then 4 again next week with a trip to Chicago in there somewhere.
I just really wanted to remind me people that I'm here and will continue to be posting as my hands allow it. Thank you for all your thoughts and prayers.
In the last two weeks, I've gotten really bogged down with fatigue and can't do too much besides eat and sleep. It's possible I may have a cold or the flu. I have 1 more day of chemo this week and then 4 again next week with a trip to Chicago in there somewhere.
I just really wanted to remind me people that I'm here and will continue to be posting as my hands allow it. Thank you for all your thoughts and prayers.
7 comments:
Of course your still here!! Never a doubt! First you can't sleep, now you sleep a lot. Isn't cancer fun?? Pretty soon this will all be behind you and you will be back to your usual annoying self! (I had to get that in there. What with all the great things everyone is saying about you, your going to end up with a big head! Even though they are true!) I love you big guy! Remember your my best friend and I am always thinking about you.
ReplyDelete
AnonymousApril 3, 2009 at 5:43 AMhi again, how u today? Still tired?
ReplyDelete
My mom has suffered with neuropathy of her hands, she has been on and off chemo for the past 5 years and the numbness in her hands and feet really bothers her. She used to love knitting but her hands just dont want to co-operate at the moment.
Are you having chemo for 4days in a row, then rest of week off?
Steven is on day 4 of his chemo, just 2 days left in hospital, then he should be home for 2 or 3 weeks, not sure yet. He will have 6 cycles of this. I am not sure of all the chemo drugs they are using on steven at the moment, but the bags i have seen hanging on his drip stand is methotrexate, cytarabine, ifosphamide,vincristine and then the steroid, decadron. Hopefully i'll see the dr today and
see if there is any more to add to the cocktail! He is still feeling fine and has no real complaints.......except for constipation, but i rate that as minor and should be easily sorted. His laptop speed is very slow and he is getting extremely frustrated as that is his only connection with the outside world. If he walks in the ward passage, he has to wear a mask and no other patient can be out of their rooms!! Very strict isolation, they run it with military precision....and very restrictive with what he eats. His sugar has gone up quite a bit, so he's on low sugar diet. Apparantly thats normal with methotrexate, did you have an increase in your blood sugar levels? hope you are feeling a bit more energetic over the weekend, love alison- AnonymousApril 6, 2009 at 12:42 PM
How you guys keeping? Steven came out of hospital after 6 days, and he was having serious cabin fever and needed to get home! I think he is feeling just like you said you were feeling in this entry......tired, fatigued and the numbness in his fingers is bothering him. He cant open the medicine bottles and typing is becoming more difficult. Apparantly the vincristine is the chemo that does that. We were going to go away for the easter weekend, but his dr has advised us not to, as there will be lots of young kids there, and they are full of viruses!! Are you going anywhere? We are actually quite happy to just stay home, have a normal routine, with no stress.
ReplyDelete
Did you go the chicago hospital, do they do all the biopsys and L.Ps there?
Steven has been very down the past 2 days and lives for his next mood stabilising pill, he is still struggling so much emotionally. I am sure you also have your 'down' days.
I hope you are over your cold or flu and that this week is going better, speak soon, alison - AnonymousApril 7, 2009 at 6:32 PM
Hi Jonathan! How are you feeling? We've missed not hearing from you. We're sending positive thoughts your way.
ReplyDelete - AnonymousApril 8, 2009 at 9:06 AM
Jonathon & Katie you continue to be in my heart and prayers - This week especially I'm frequently
ReplyDelete
awaken by God and told to pray for you in the
middle of the night.
Know God the Father, Son and Spirit are with you,
close to you and cares about you at all times.
May God's peace be with you. You're in our thoughts and prayers extra strong this week. A week with no posts to the blog seems to indicate it's a rough one for you.
ReplyDelete- AnonymousApril 9, 2009 at 1:59 PM
Hi guys, yes i am also assuming you are having one of those 'down' weeks, where things you cant control are taking over. We really are thinking of you constantly and hope you return to some form of 'normality' asap. Steven is at day 10, (since the 1st lot of chemo in hospital was given) and apparantly its the risky time for him when his white cells will be at their lowest....so we are just staying home and telling friends and family to only come if they are 100% healthy.
ReplyDelete
wish we could be there to give you more of a solid support, but considering the distance, it just aint possible! What i asked the dr to do in hospital, was tell us one positive thing each day, no matter how small, so that our minds could remain positive.....
and katie, i think of you as much as i do jonathon, as i know its really hard to endure this chemo process. I keep asking myself, 'why do people who love each other so much, have to go thru this hell, its just not fair'.
love to you both, alison and steven
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Of course your still here!! Never a doubt! First you can't sleep, now you sleep a lot. Isn't cancer fun?? Pretty soon this will all be behind you and you will be back to your usual annoying self! (I had to get that in there. What with all the great things everyone is saying about you, your going to end up with a big head! Even though they are true!) I love you big guy! Remember your my best friend and I am always thinking about you.
ReplyDeletehi again, how u today? Still tired?
ReplyDeleteMy mom has suffered with neuropathy of her hands, she has been on and off chemo for the past 5 years and the numbness in her hands and feet really bothers her. She used to love knitting but her hands just dont want to co-operate at the moment.
Are you having chemo for 4days in a row, then rest of week off?
Steven is on day 4 of his chemo, just 2 days left in hospital, then he should be home for 2 or 3 weeks, not sure yet. He will have 6 cycles of this. I am not sure of all the chemo drugs they are using on steven at the moment, but the bags i have seen hanging on his drip stand is methotrexate, cytarabine, ifosphamide,vincristine and then the steroid, decadron. Hopefully i'll see the dr today and
see if there is any more to add to the cocktail! He is still feeling fine and has no real complaints.......except for constipation, but i rate that as minor and should be easily sorted. His laptop speed is very slow and he is getting extremely frustrated as that is his only connection with the outside world. If he walks in the ward passage, he has to wear a mask and no other patient can be out of their rooms!! Very strict isolation, they run it with military precision....and very restrictive with what he eats. His sugar has gone up quite a bit, so he's on low sugar diet. Apparantly thats normal with methotrexate, did you have an increase in your blood sugar levels? hope you are feeling a bit more energetic over the weekend, love alison
How you guys keeping? Steven came out of hospital after 6 days, and he was having serious cabin fever and needed to get home! I think he is feeling just like you said you were feeling in this entry......tired, fatigued and the numbness in his fingers is bothering him. He cant open the medicine bottles and typing is becoming more difficult. Apparantly the vincristine is the chemo that does that. We were going to go away for the easter weekend, but his dr has advised us not to, as there will be lots of young kids there, and they are full of viruses!! Are you going anywhere? We are actually quite happy to just stay home, have a normal routine, with no stress.
ReplyDeleteDid you go the chicago hospital, do they do all the biopsys and L.Ps there?
Steven has been very down the past 2 days and lives for his next mood stabilising pill, he is still struggling so much emotionally. I am sure you also have your 'down' days.
I hope you are over your cold or flu and that this week is going better, speak soon, alison
Hi Jonathan! How are you feeling? We've missed not hearing from you. We're sending positive thoughts your way.
ReplyDeleteJonathon & Katie you continue to be in my heart and prayers - This week especially I'm frequently
ReplyDeleteawaken by God and told to pray for you in the
middle of the night.
Know God the Father, Son and Spirit are with you,
close to you and cares about you at all times.
May God's peace be with you.
You're in our thoughts and prayers extra strong this week. A week with no posts to the blog seems to indicate it's a rough one for you.
ReplyDeleteHi guys, yes i am also assuming you are having one of those 'down' weeks, where things you cant control are taking over. We really are thinking of you constantly and hope you return to some form of 'normality' asap. Steven is at day 10, (since the 1st lot of chemo in hospital was given) and apparantly its the risky time for him when his white cells will be at their lowest....so we are just staying home and telling friends and family to only come if they are 100% healthy.
ReplyDeletewish we could be there to give you more of a solid support, but considering the distance, it just aint possible! What i asked the dr to do in hospital, was tell us one positive thing each day, no matter how small, so that our minds could remain positive.....
and katie, i think of you as much as i do jonathon, as i know its really hard to endure this chemo process. I keep asking myself, 'why do people who love each other so much, have to go thru this hell, its just not fair'.
love to you both, alison and steven