I apologize for the lack of posts and updates. But my neuropathy has set in so bad that I can't type like I used to. So I'm doing this letter by letter. I found out this week that my bone marrow transplant will take place during the month of May. At which time, I'll be hospitalized in Chicago for about 30 days.
Overall, I've been feeling very fatigued from this treatment. It's become very difficult to even move my legs and walk like normal. I don't feel well at all. It's been very hard to stay positive in the face of all this. I feel like I'm letting people down sometimes, but I'm so tired all the time, that I can't help it.
I just wanted to update everyone and let people know that I'm still fighting, even if I can't post every day. I'll do the best I can to bring you updates as my hands allow me to type.
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Thursday, April 9, 2009
Fatigue Setting In
I apologize for the lack of posts and updates. But my neuropathy has set in so bad that I can't type like I used to. So I'm doing this letter by letter. I found out this week that my bone marrow transplant will take place during the month of May. At which time, I'll be hospitalized in Chicago for about 30 days.
Overall, I've been feeling very fatigued from this treatment. It's become very difficult to even move my legs and walk like normal. I don't feel well at all. It's been very hard to stay positive in the face of all this. I feel like I'm letting people down sometimes, but I'm so tired all the time, that I can't help it.
I just wanted to update everyone and let people know that I'm still fighting, even if I can't post every day. I'll do the best I can to bring you updates as my hands allow me to type.
Overall, I've been feeling very fatigued from this treatment. It's become very difficult to even move my legs and walk like normal. I don't feel well at all. It's been very hard to stay positive in the face of all this. I feel like I'm letting people down sometimes, but I'm so tired all the time, that I can't help it.
I just wanted to update everyone and let people know that I'm still fighting, even if I can't post every day. I'll do the best I can to bring you updates as my hands allow me to type.
9 comments:
AnonymousApril 10, 2009 at 12:29 AMPlease dont apologise for not updating everyone regularly, the chemo destroys you, physically and mentally...BUT its temporary, things will get easier. I have often heard the saying "its the journey that counts, not the destination", well that definately DOESNT apply for your & stevens journey....we are just focusing on the end of treatment...we are hating this crappy existence of chemo and its multitude of side effects! Have you got bad mouth ulcers? Steven has really struggled with that this past week, and his hb is low, so weakness and dizzy spells are all part of his day. I am glad you are getting the transplant soon, and even more pleased that you are getting some time off before that treatment commences.
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FIGHT ON, take one day at a time,
love from alison
Alison is right. Focus on the "end of treatment." Your family and friends are all here to support you.
ReplyDelete
No apology needed. You continue to be in our prayers. Stay focused on what you need to and let others do the rest. I hope you have a blessed Easter celebrating our Risen Lord.
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Pam and Marty Ogren- AnonymousApril 10, 2009 at 11:33 PM
Jonathon and Katie,
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I think of you all daily. Please know that you are in my prayers. It seems that things are usually worse before they get better when a change is expected....stay strong!!
Friends in Arkansas You really shouldn't apologize. I know that you want us to all know how you are doing, but those of us who know you, know that you are strong and able to take this on, even the nasty side effects! Your friends and family, the huge support that you have, are all here for you and ready to do whatever you and Katie need. Let us take care of the little things. Your job is to do what you can when you can. Don't sweat all of the small stuff. Just because you are having difficulty typing right now, most of us have that and we don't have cancer!! Hang in there....May is practacilly here and then the transplant and then the rest of your life! One day at a time, you are getting there! I am so proud of you and so inspired by both you and Katie. It sure makes the rest of us look at our own problems and realize that they are so small. Life is a great thing and we are all here for each other. I love you very much and am here for you both, but you already know that! You will be back to work soon, and wishing for a day off!
ReplyDeleteHey Jonathon!! It was so great to see you have such a great weekend! I was so happy to see you up and around and that smile back on your face! Now once we get this transplant thing over with, we can get you back to work!!
ReplyDelete- AnonymousApril 13, 2009 at 3:57 PM
i think i spoke to soon about steven not getting an infection. He started spiking a temp this afternoon and by 7pm it had gone up to 39.5...so i ph hospital, who ph dr and he said i must bring him in immediately for iv antibiotics. so he's now admitted and they trying to find source of infection. We had lots of people over for a braai today, which was probably too much for him to cope with...think we must scale down on 'big' gatherings and keep it to a more manageable number of people! otherwise we had a good weekend with lots of eating. how was your weekend? Chat soon, love alison
ReplyDelete Alison -
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Sorry to hear about Steven! Hopefully the antibiotics will kick in fast and bring his temp down. I will be thinking about you both. Tell Steven that I can't handle "big" gatherings either, and I don't have cancer!! Keep strong, this will pass soon!
I haven't had chemo in over a week so my appetite has come back with a vengeance these last few days. So I've been eating like crazy.
ReplyDelete
Sorry to hear about Steven. Hopefully they'll figure out the source of the infection quickly. What do the doctors think?
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Please dont apologise for not updating everyone regularly, the chemo destroys you, physically and mentally...BUT its temporary, things will get easier. I have often heard the saying "its the journey that counts, not the destination", well that definately DOESNT apply for your & stevens journey....we are just focusing on the end of treatment...we are hating this crappy existence of chemo and its multitude of side effects! Have you got bad mouth ulcers? Steven has really struggled with that this past week, and his hb is low, so weakness and dizzy spells are all part of his day. I am glad you are getting the transplant soon, and even more pleased that you are getting some time off before that treatment commences.
ReplyDeleteFIGHT ON, take one day at a time,
love from alison
Alison is right. Focus on the "end of treatment." Your family and friends are all here to support you.
ReplyDeleteNo apology needed. You continue to be in our prayers. Stay focused on what you need to and let others do the rest. I hope you have a blessed Easter celebrating our Risen Lord.
ReplyDeletePam and Marty Ogren
Jonathon and Katie,
ReplyDeleteI think of you all daily. Please know that you are in my prayers. It seems that things are usually worse before they get better when a change is expected....stay strong!!
Friends in Arkansas
You really shouldn't apologize. I know that you want us to all know how you are doing, but those of us who know you, know that you are strong and able to take this on, even the nasty side effects! Your friends and family, the huge support that you have, are all here for you and ready to do whatever you and Katie need. Let us take care of the little things. Your job is to do what you can when you can. Don't sweat all of the small stuff. Just because you are having difficulty typing right now, most of us have that and we don't have cancer!! Hang in there....May is practacilly here and then the transplant and then the rest of your life! One day at a time, you are getting there! I am so proud of you and so inspired by both you and Katie. It sure makes the rest of us look at our own problems and realize that they are so small. Life is a great thing and we are all here for each other. I love you very much and am here for you both, but you already know that! You will be back to work soon, and wishing for a day off!
ReplyDeleteHey Jonathon!! It was so great to see you have such a great weekend! I was so happy to see you up and around and that smile back on your face! Now once we get this transplant thing over with, we can get you back to work!!
ReplyDeletei think i spoke to soon about steven not getting an infection. He started spiking a temp this afternoon and by 7pm it had gone up to 39.5...so i ph hospital, who ph dr and he said i must bring him in immediately for iv antibiotics. so he's now admitted and they trying to find source of infection. We had lots of people over for a braai today, which was probably too much for him to cope with...think we must scale down on 'big' gatherings and keep it to a more manageable number of people! otherwise we had a good weekend with lots of eating. how was your weekend? Chat soon, love alison
ReplyDeleteAlison -
ReplyDeleteSorry to hear about Steven! Hopefully the antibiotics will kick in fast and bring his temp down. I will be thinking about you both. Tell Steven that I can't handle "big" gatherings either, and I don't have cancer!! Keep strong, this will pass soon!
I haven't had chemo in over a week so my appetite has come back with a vengeance these last few days. So I've been eating like crazy.
ReplyDeleteSorry to hear about Steven. Hopefully they'll figure out the source of the infection quickly. What do the doctors think?