Well, the news today was definitely not expected based on how things had been going. Today, Jonathon's doctor in Chicago called and said that his bone marrow biopsy on Monday showed that Jonathon still has leukemia. So he will need a bone marrow transplant.
The good news is that even though his sister Jenna is not a match, they did search the registry, and there are a few matches for him. Also when they do the bone marrow transplant, that would mean he'd get better faster, and probably not need three years of chemo. The not as good news is that these matches may be anywhere in the world, so to try to get things moving a little faster, they will test Jonathon's mom and dad on Wednesday. They are only a 1% chance of matching, so they don't really expect them to match, but just in case, they will check. If Peggy or Bob don't match, they will work with the registry to find out where these other people are and coordinate a donation.
A lot of you offered to get tested for a bone marrow match when this all first started, and while we are so touched that so many of you are willing to do this, since there are already matches in the registry, we don't need you to do this.
What we do need is your continued prayers and positive thoughts. We are so lucky to have so many special people in our lives, and we know we're going to need to lean on you, especially since the road ahead keeps changing on us. Thank you for being there for us.
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Wednesday, February 25, 2009
A little different road than expected
Well, the news today was definitely not expected based on how things had been going. Today, Jonathon's doctor in Chicago called and said that his bone marrow biopsy on Monday showed that Jonathon still has leukemia. So he will need a bone marrow transplant.
The good news is that even though his sister Jenna is not a match, they did search the registry, and there are a few matches for him. Also when they do the bone marrow transplant, that would mean he'd get better faster, and probably not need three years of chemo. The not as good news is that these matches may be anywhere in the world, so to try to get things moving a little faster, they will test Jonathon's mom and dad on Wednesday. They are only a 1% chance of matching, so they don't really expect them to match, but just in case, they will check. If Peggy or Bob don't match, they will work with the registry to find out where these other people are and coordinate a donation.
A lot of you offered to get tested for a bone marrow match when this all first started, and while we are so touched that so many of you are willing to do this, since there are already matches in the registry, we don't need you to do this.
What we do need is your continued prayers and positive thoughts. We are so lucky to have so many special people in our lives, and we know we're going to need to lean on you, especially since the road ahead keeps changing on us. Thank you for being there for us.
The good news is that even though his sister Jenna is not a match, they did search the registry, and there are a few matches for him. Also when they do the bone marrow transplant, that would mean he'd get better faster, and probably not need three years of chemo. The not as good news is that these matches may be anywhere in the world, so to try to get things moving a little faster, they will test Jonathon's mom and dad on Wednesday. They are only a 1% chance of matching, so they don't really expect them to match, but just in case, they will check. If Peggy or Bob don't match, they will work with the registry to find out where these other people are and coordinate a donation.
A lot of you offered to get tested for a bone marrow match when this all first started, and while we are so touched that so many of you are willing to do this, since there are already matches in the registry, we don't need you to do this.
What we do need is your continued prayers and positive thoughts. We are so lucky to have so many special people in our lives, and we know we're going to need to lean on you, especially since the road ahead keeps changing on us. Thank you for being there for us.
5 comments:
AnonymousFebruary 25, 2009 at 10:08 PMI know you were hoping for different news, but
ReplyDelete
I am praying for a LOCAL match.- AnonymousFebruary 26, 2009 at 6:27 AM
I know God has thrown another curve ball at both of you and for that, I am truly sorry, and honestly, very upset. But I am confident that you both have the strength to weather this storm, and become ths stronger because of it. The fact that the transplant will help Jon get better sooner, and reduce the overall chemo treatments will be a welcome blessing. Keep positive, just a bump in the road.
ReplyDelete 
a quicker recovery is what you need to focus on. Whatever I can do for you, call me. You know what you mean to me. Anything that I can do or have is yours.
ReplyDeleteGetting better sooner is a good thing. This is just a minor detour in the path to recovery. Keep stong and we will all keep praying.
ReplyDelete
Registry or not, give the word and I will get tested.Jonathon, this is just a bump. We'll all keep you in our prayers, and prayer is a powerful thing! You have a ton of support, we're here for you to lean on any way you need us.
ReplyDelete
If you find you need us to be tested, a bunch of us are happy to do it!!!
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I know you were hoping for different news, but
ReplyDeleteI am praying for a LOCAL match.
I know God has thrown another curve ball at both of you and for that, I am truly sorry, and honestly, very upset. But I am confident that you both have the strength to weather this storm, and become ths stronger because of it. The fact that the transplant will help Jon get better sooner, and reduce the overall chemo treatments will be a welcome blessing. Keep positive, just a bump in the road.
ReplyDeletea quicker recovery is what you need to focus on. Whatever I can do for you, call me. You know what you mean to me. Anything that I can do or have is yours.
ReplyDeleteGetting better sooner is a good thing. This is just a minor detour in the path to recovery. Keep stong and we will all keep praying.
ReplyDeleteRegistry or not, give the word and I will get tested.
Jonathon, this is just a bump. We'll all keep you in our prayers, and prayer is a powerful thing! You have a ton of support, we're here for you to lean on any way you need us.
ReplyDeleteIf you find you need us to be tested, a bunch of us are happy to do it!!!