My stomach decided it was going to wake me up again this morning at 1:04am, so now that I'm up, I figured I'd squeeze in a post before trying to go back to sleep. I'll admit, upon hearing the news Wednesday, I was very emotional and afraid of what was to come. But my doctors are still optimistic, both Dr. Park and Dr. Artz from Chicago. They both told me that, while this isn't the news they were hoping for, it's expected, and plan B is in place already. Plan B is starting next week with 4 days straight of chemo with one trip to Chicago included. That's 3 days here and 1 day there in Chicago getting chemo and having some pre-bone marrow transplant tests. As Katie mentioned in the previous post, my Mom and Dad will be both be going to be tested as well. We're still trying to organize a way for those people who want to contribute to doing that too. Katie and I are working on those details. We know people want to help out and get tested, and for that, we are truly grateful. Chances are, you may not come back as a match for me, but someone else in dire need could have their life saved by you.
As the next couple of days go by, we'll have more information on what we're going to do and our next course of actions.
I still have Leukemia, but it doesn't have me. I have too much I want to accomplish in this life for this to get me down. Yeah, I'm scared about this next course in treatment, but I'm also hopeful that between my strength and the determination of my doctors, there's no reason why I can't beat this.
Thank you again for all the support that's been displayed here in comments. It really helps keep me going and gives me courage to be stronger to face the unknowns ahead.
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Friday, February 27, 2009
Day 36: The Unknowns Ahead
My stomach decided it was going to wake me up again this morning at 1:04am, so now that I'm up, I figured I'd squeeze in a post before trying to go back to sleep. I'll admit, upon hearing the news Wednesday, I was very emotional and afraid of what was to come. But my doctors are still optimistic, both Dr. Park and Dr. Artz from Chicago. They both told me that, while this isn't the news they were hoping for, it's expected, and plan B is in place already. Plan B is starting next week with 4 days straight of chemo with one trip to Chicago included. That's 3 days here and 1 day there in Chicago getting chemo and having some pre-bone marrow transplant tests. As Katie mentioned in the previous post, my Mom and Dad will be both be going to be tested as well. We're still trying to organize a way for those people who want to contribute to doing that too. Katie and I are working on those details. We know people want to help out and get tested, and for that, we are truly grateful. Chances are, you may not come back as a match for me, but someone else in dire need could have their life saved by you.
As the next couple of days go by, we'll have more information on what we're going to do and our next course of actions.
I still have Leukemia, but it doesn't have me. I have too much I want to accomplish in this life for this to get me down. Yeah, I'm scared about this next course in treatment, but I'm also hopeful that between my strength and the determination of my doctors, there's no reason why I can't beat this.
Thank you again for all the support that's been displayed here in comments. It really helps keep me going and gives me courage to be stronger to face the unknowns ahead.
As the next couple of days go by, we'll have more information on what we're going to do and our next course of actions.
I still have Leukemia, but it doesn't have me. I have too much I want to accomplish in this life for this to get me down. Yeah, I'm scared about this next course in treatment, but I'm also hopeful that between my strength and the determination of my doctors, there's no reason why I can't beat this.
Thank you again for all the support that's been displayed here in comments. It really helps keep me going and gives me courage to be stronger to face the unknowns ahead.
3 comments:
We are all here for you both!! Your damn right you are going to beat this! After all, that is what your shirt says! Something that others can do that I have already done is go to this website:www.marrow.org and sign up. Doing this for a fee of $52.00 they will send you a tissue typing kit. That consists of several swabs that are then used to collect DNA. They are then sent back to their labs. You will then be part of the National Bone Marrow Registry. While we all want to be a match for you, we can at least be some one elses match. Anything that I can do to keep you from suffering any more treatment, or for anyone else, sign me up!!
ReplyDeleteJon & Katie - I hope these promises will be an encouragement to you:
ReplyDelete
“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.” – Jeremiah 29:11
But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not faint. – Isaiah 40:31
Praise the Lord, O my soul, and forget not all his benefits – who forgives all your sins and heals all your diseases, who redeems your life from the pit and crowns you with love and compassion, who satisfies your desires with good things so that your youth is renewed like the eagle’s. – Psalm 103:2-5
AnonymousFebruary 27, 2009 at 1:16 PMWow, I didn't know testing was that easy. I was getting all nerved up for some needle action (as I mentioned before, I'm OK unless the pointy end is headed at ME). I'm going to order one of those kits.
ReplyDelete
Hang in there, you guys. When one door closes, another one opens. And if it doesn't, just throw a chair through a window!
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We are all here for you both!! Your damn right you are going to beat this! After all, that is what your shirt says! Something that others can do that I have already done is go to this website:www.marrow.org and sign up. Doing this for a fee of $52.00 they will send you a tissue typing kit. That consists of several swabs that are then used to collect DNA. They are then sent back to their labs. You will then be part of the National Bone Marrow Registry. While we all want to be a match for you, we can at least be some one elses match. Anything that I can do to keep you from suffering any more treatment, or for anyone else, sign me up!!
ReplyDeleteJon & Katie - I hope these promises will be an encouragement to you:
ReplyDelete“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.” – Jeremiah 29:11
But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not faint. – Isaiah 40:31
Praise the Lord, O my soul, and forget not all his benefits – who forgives all your sins and heals all your diseases, who redeems your life from the pit and crowns you with love and compassion, who satisfies your desires with good things so that your youth is renewed like the eagle’s. – Psalm 103:2-5
Wow, I didn't know testing was that easy. I was getting all nerved up for some needle action (as I mentioned before, I'm OK unless the pointy end is headed at ME). I'm going to order one of those kits.
ReplyDeleteHang in there, you guys. When one door closes, another one opens. And if it doesn't, just throw a chair through a window!