I win.
As it turns out, the medical team at the University of Chicago was able to appeal my insurance's original decision to deny coverage for Gleevec. Scroll down to see the backstory in my original post about this. After convincing them that this could possibly have some success in treating GVHD, they decided to give us the go-ahead, which is great news because this drug is very expensive and not even available at certain pharmacies. It has to be mail ordered, which I'm not thrilled about...but we'll give it a fair shake. Something about being able to talk to a pharmacist when you want to know more about side effects seems a lot more personal than a getting a bag full of drugs in a mailbox. You need SS numbers, addresses, ID numbers, and the names of your first born children to hand over before anyone will prescribe you any drug....but we're okay with it sitting in a mailbox for hours till I get it? Mm-k. And they say I'm goofy.
In any case, Gleevec has been approved, and we're waiting for it to arrive. All is right in our world today, thanks to the efforts of UCH. Great job to Dr. Artz, Linda and Lisa! You guys rock.
My wife is still doing the Snoopy Happy Dance.
Subscribe to:
Post Comments (Atom)
Saturday, January 15, 2011
Gleevec Part II
I win.
As it turns out, the medical team at the University of Chicago was able to appeal my insurance's original decision to deny coverage for Gleevec. Scroll down to see the backstory in my original post about this. After convincing them that this could possibly have some success in treating GVHD, they decided to give us the go-ahead, which is great news because this drug is very expensive and not even available at certain pharmacies. It has to be mail ordered, which I'm not thrilled about...but we'll give it a fair shake. Something about being able to talk to a pharmacist when you want to know more about side effects seems a lot more personal than a getting a bag full of drugs in a mailbox. You need SS numbers, addresses, ID numbers, and the names of your first born children to hand over before anyone will prescribe you any drug....but we're okay with it sitting in a mailbox for hours till I get it? Mm-k. And they say I'm goofy.
In any case, Gleevec has been approved, and we're waiting for it to arrive. All is right in our world today, thanks to the efforts of UCH. Great job to Dr. Artz, Linda and Lisa! You guys rock.
My wife is still doing the Snoopy Happy Dance.
As it turns out, the medical team at the University of Chicago was able to appeal my insurance's original decision to deny coverage for Gleevec. Scroll down to see the backstory in my original post about this. After convincing them that this could possibly have some success in treating GVHD, they decided to give us the go-ahead, which is great news because this drug is very expensive and not even available at certain pharmacies. It has to be mail ordered, which I'm not thrilled about...but we'll give it a fair shake. Something about being able to talk to a pharmacist when you want to know more about side effects seems a lot more personal than a getting a bag full of drugs in a mailbox. You need SS numbers, addresses, ID numbers, and the names of your first born children to hand over before anyone will prescribe you any drug....but we're okay with it sitting in a mailbox for hours till I get it? Mm-k. And they say I'm goofy.
In any case, Gleevec has been approved, and we're waiting for it to arrive. All is right in our world today, thanks to the efforts of UCH. Great job to Dr. Artz, Linda and Lisa! You guys rock.
My wife is still doing the Snoopy Happy Dance.
3 comments:
Sounds to me that going by the name of this new drug, you should like "Glee". fingers crossed!
ReplyDelete
Hi jonathon.
ReplyDelete
I TOO HAVE GVHD AND SCLERODERMA. I WAS DIAGNOSED W AML IN 05 ans HAD A BMT IN 06. I CAN BARELY DO ANYTHING ANYMORE. I AM CURRENTLY GETTING PHOTO BUT I ALSO HAD A FEW TREATMENTS OF LIDOCAINE. PLEASE FEEL FREE TO CONTACT ME AT DMARIE726@GMAIL.COM. I'VE BEEN TRYING TO FIND OTHERS LIKE ME:)
Subscribe to:
Post Comments (Atom)
Sounds to me that going by the name of this new drug, you should like "Glee". fingers crossed!
ReplyDeleteGood news once again! :-)
ReplyDeleteHi jonathon.
ReplyDeleteI TOO HAVE GVHD AND SCLERODERMA. I WAS DIAGNOSED W AML IN 05 ans HAD A BMT IN 06. I CAN BARELY DO ANYTHING ANYMORE. I AM CURRENTLY GETTING PHOTO BUT I ALSO HAD A FEW TREATMENTS OF LIDOCAINE. PLEASE FEEL FREE TO CONTACT ME AT DMARIE726@GMAIL.COM. I'VE BEEN TRYING TO FIND OTHERS LIKE ME:)